B Cells, Meds and More

My most recent visit to Dr. Z revealed what I had suspected ... I was getting Okra. I don't know the dose, but since my B cell count is still low I continue to be followed by the researchers. We'll see what the recent labs show, and how long that will continue.  I also discussed with Dr. Z my increasing gag reflex when I take the MTX every week, and what appears to be a diminished effect (stiffness has been returning a few days before dosing day instead of just a day before). She offered to increase the dose by a pill, which I declined (I am having some serious issues swallowing the little buggers, and I know it's mental). Before my daughter was diagnosed (November 2009) with diabetes, I'd have never dreamed I'd ask about injectible meds. Alas, Dr. Z says the injectible MTX is more effective with less side effects. Sign me up! So, I have another week of pills, then I'm cashing in my new prescription for vials, needles and syringes.  If my 5 year old can endure 1000 shots in just over 6 months, certainly I can endure one a week!

About prescriptions ... since I'm now getting Social Security Disability (but not Medicare yet, waiting period), my children have been terminated from SoonerCare coverage. This has left me scrambling for alternatives to the outrageous costs of cash-pay medical expenses.  (An interesting note, the insurance company was paying $12 for my MTX. Cash pay at the same pharmacy for the same prescription was $40.  So, the next person who wants to argue with me that health care doesn't need reforming, LOOK OUT!)  I've discovered several resources I am happy to share.  First, NeedyMeds.org ... this is a GREAT resource - you can search meds by their name or by the disease they treat. There are lots of programs here.  Next, HealthWarehouse.com ... hello, savings! And, if you call them to order a new Rx or a transfered Rx, mention "First Month Free For Me" and your first month of generic prescriptions is FREE! And, if you "Like" them on Facebook, you get a discount code for a $50 non-prescription order.

As for how I'm doing with my disease ... still no cure. The rain continues to flare it. My fingers continue to morph into useless ugly appendages. My joints still lock up (I couldn't bend one of my toes for a couple of days during the last rainy session we had). Some days I limp because my foot or my knee aches. My typing accuracy is a CHALLENGE.  However, the sun still shines, my children still giggle, my husband still loves me, and I am still here to enjoy it, so I keep movin'.